Therapeutic education programme in TTR-FAP

نویسندگان

  • Marie Théaudin
  • Cécile Cauquil
  • Teresa Antonini
  • Vincent Algalarrondo
  • Céline Labeyrie
  • Sophie Aycaguer
  • Marie Kubezyk
  • Colombe Lemoine
  • Géraldine Nonnez
  • Agnès Morier
  • Nadia Kouchi
  • Amandine Darras
  • Nathalie Coste
  • Mireille Clément
  • David Adams
چکیده

Background The French National Reference centre for Transthyretinrelated amyloidosis (ATTR) was accredited in 2005. One of its 10 lines of action is to inform and educate patients about their disease to improve their care and reduce morbidities. We thus decided to elaborate a therapeutic patient education (TPE) programme, starting with patients’ needs assessment. We will describe our needs assessment and discuss our experience in TPE for ATTR patients.

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عنوان ژورنال:

دوره 10  شماره 

صفحات  -

تاریخ انتشار 2015